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A Special Mother's Day for Local Mom and Dad--Mikayla Lewis

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NASHVILLE, Tenn.--Journie Muse acts like any other healthy, one-year-old. She laughs, cries and plays with her toys. Journie is also diagnosed with albinism.

"Journie is unique, tailor-made for my husband and myself. He [God] gave us Journie because He knew that we could handle her," said Larcenia Muse.

Journie's parents: Larcenia and Wayne Muse faced a tough journey, before having their daughter.

The couple married in 1998. Shortly after, they lost a child in premature birth. The same thing happened 10 years later.

"Felt like less of a woman because I couldn't give my husband a child," explained Muse.

Less than a year later, the couple encountered two miscarriages. Two years ago, Larcenia Muse lost another child through stillbirth.

"This has taken a toll on our marriage, this has taken a toll on our finances," said Muse.

The couple did not have insurance at the time. Muse says she took tablets to push the embryo through her body on her own at home.

"I asked my husband to leave because I didn't want him to see what I was going to endure," Muse said.

Larcenia Muse says Galations 6:9 got her through the hard times: "Let us not become weary in doing good, for at the proper time we will reap a harvest if we do not give up." (NIV)

Muse and her husband did not give up. Six months later they found out they were pregnant with Journie. She was born on April 3, 2013. Doctors diagnosed her at birth with albinism. With her condition also came nystagmus, an involuntary eye movement. Muse says more bad news came when doctors told her Journie may never be able to be exposed to the sun.

"Just took away that joy that I had," said Muse.

Her first year as a mother was spent going to the doctor for Journie's check-ups and researching albinism.

"You have to have faith and believe," Muse said.

Faith paid off, and Journie just celebrated her first birthday in Centennial Park...in the sun. Larcenia Muse says today is the first Mother's Day she feels at peace.

"It's priceless,  I think that mothers may look at this day differently depending on what they are going through, but for me and what we went through to get my Journie... I feel great, " she said with a smile.

Doctors continue to monitor Journie's vision, and Muse continues her research. Muse says she and her husband are focused on building confidence in their daughter.

Follow Mikayla Lewis on Twitter @MikaylaFox17.

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